Dance Party

 

Well if you follow me on Insta, you would see my dance party I had tonight. Okay, alright. In all honesty it was one song. One really good song and some really good dance moves if I do say so myself!

I shared a sneak peek at what one days “activity” can look like. One song later and I’m knocked on my booty, BUT I got it in. A dance sesh may seem small to some, but this is BIG to me. It's been awhile since I was able to dance a full song out. My Chronic illness has stolen a lot of joy in the last few years so I'm claiming every victory I can, honoring every bit of progress I make, & making a dork of myself while doing it. (and of course, bringing you along with for the journey 😉)

I may have gotten (more like definitely got) a little cocky with dancing through an entire song & had to lay down to keep myself from fainting. It's all fun and games until it's not.  I’ve been laying on the couch ever since and I will continue to until I regain enough energy to get myself to bed. This is the reality and consequences of my "activity".

Progress doesn't look like a constant upward trend. It's more like a YAY I DID A THING and then BAM. You're paying for that "thing" and then some, in hopes in the long run you'll have even just one more "spoon" a day 

I don't share these moments, the good & the bad, to be all poor me boo hoo, cause that's not it at all. I’m actually thankful for my illness. It’s taught me a lot and it’s forced me to rely that much more on the Lord.  I share to raise awareness for my fellow spoonies. For the people who's illnesses are invisible and who feel daily judgements from people who don't get it because after all we "look" normal, right? 

If you start to do better one day, it's seen as progress and most think, "well it's only up from here!” And the judgment comes that much harsher when you have a bad day and you once again can't get out of bed.

I share these moments to raise awareness & to make other spoonies feel a little less lonely in the swings that come along with dysautonomic syndromes.  I share to show the struggles, to show the victories of having a chronic illness.

If you have a loved one who suffers with an invisible illness of any kind, I encourage you to ride the waves with them. When they're having a bad day physically, just be with them in that bad day. Remind them that it’s okay to be bummed and discouraged. Sometimes feeling the feelings is all you need. Cause let’s be honest, crappy days are just crappy days. 

So, my fellow potsies, that dance sesh was for you. I hope you danced along if you had a spoon to spare. 😂