Flare days

Since our home flooded, we've been bounced around from hotel to Airbnb to Airbnb. The move this past week I figured I was strong enough to leave my walker in our temporary storage unit until we'd move back (this next week) to save room and ultimately save an extra trip back. And I was right, I was strong enough Until today. I hit a MAJOR flare and struggled getting from the kitchen to the bedroom and needed my husband to play the role of my walker to get me to bed.

Its hard being helplessly weak and its hard not trusting your body to get you from one room to the next without giving out and having a fainting spell. Flares are part of the reality of chronic illness. They make you feel like you're in over your head, like a walk down a hallway feels like a marathon, writing an email takes you more brain power than you have, your knees ache, heart rate is all over the place, and trying to keep the emotion from bubbling over is an impossibility. But you just gotta live through it, lean on your person, let yourself rest, and eat pizza in bed. Dysautonomia won today, but tomorrow will be a better day.